Adaptation of the HIV Stigma Scale in Spaniards with HIV

  1. Fuster Ruiz de Apocada, María Jóse
  2. Molero Alonso, Fernando
  3. Holgado Tello, Francisco Pablo
  4. Ubillos Landa, Silvia
Zeitschrift:
The Spanish Journal of Psychology

ISSN: 1138-7416

Datum der Publikation: 2015

Ausgabe: 18

Art: Artikel

DOI: 10.1017/S1138741615000694 DIALNET GOOGLE SCHOLAR lock_openOpen Access editor

Andere Publikationen in: The Spanish Journal of Psychology

Ziele für nachhaltige Entwicklung

Zusammenfassung

The primary goal of this study was to adapt Berger, Ferrans, & Lahley (2001) HIV Stigma Scale in Spain, using Bunn, Solomon, Miller, & Forehand (2007) version. A second goal assessed whether the four-factor structure of the adapted scale could be explained by two higher-order dimensions, perceived external stigma and internalized stigma. A first qualitative study (N = 40 people with HIV, aged 28�59) was used to adapt the items and test content validity. A second quantitative study analyzed construct and criterion validity. In this study participants were 557 people with HIV, aged 18�76. The adapted HIV Stigma Scale for use in Spain (HSSS) showed a good internal consistency (a = .88) and good construct validity. Confirmatory Factor Analyses yielded a first-order, four-factor structure and a higher-order, bidimensional structure with the two expected factors (RMSEA = .051, 90% CI [.046, .056]; RMR = .073; GFI = .96; AGFI = .96; CFI = .98). Negative relations were found between stigma and quality of life (r = �.39; p < .01), self-efficacy to cope with stigma (r = �.50; p < .01) and the degree of HIV status disclosure (r = �.35; p < .01). Moreover, the people who had suffered AIDS-related opportunistic infections had a higher score in the Perceived External Stigma dimension than those who had not suffered them, t (493) = 3.02, p = .003, d = 0.26.

Bibliographische Referenzen

  • Agirrezabal A., Fuster M. J., & Valencia J. (2009). Informe FIPSE. Integración laboral de las personas con VIH. Estudio sobre la identificación de las necesidades laborales y la actitud empresarial [Job integration of people with HIV. Study of the identification of job needs and company attitude]. Madrid, Spain: FIPSE.
  • Berger B. E., Ferrans C. E., & Lashley F. R. (2001). Measuring stigma in people with HIV: Psychometric assessment of the HIV Stigma Scale. Research in Nursing and Health, 24, 518–529. http://dx.doi.org/10.1002/nur.10011
  • Bezabhe W. M., Peterson G. M., Bereznicki L., Chalmers L., & Gee P. (2013). Adherence to antiretroviral drug therapy in adult patients who are HIV-positive in Northwest Ethiopia: A study protocol. BMJ open, 3, e003559. http://dx.doi.org/10.1136/bmjopen-2013-003559
  • Bos A. E. R., Pryor J. B., Reeder G. D., & Stutterheim S. E. (2013). Stigma: Advances in theory and research. Basic and Applied Social Psychology, 35, 1–9. http://dx.doi.org/10.1080/01973533.2012.746147
  • Bunn J. Y., Solomon S. E., Millar C., & Forehand R. (2007). Measurement of stigma in people with HIV: A re-examination of the HIV Stigma Scale. AIDS Education and Prevention, 19, 198–208.
  • Choi P., Kavasery R., Desai M. M., Govindasamy S., Kamarulzaman A., & Altice F. L. (2010). Prevalence and correlates of community re-entry challenges faced by HIV-infected male prisoners in Malaysia. International Journal of STD & AIDS, 21, 416–423. http://dx.doi.org/10.1258/ijsa.2009.009180
  • Clum G., Chung S. E., Ellen J. M., & Adolescent Medicine Trials Network for HIV/AIDS Intervention. (2009). Mediators of HIV-related stigma and risk behavior in HIV infected young women. AIDS Care, 21, 1455–1462. http://dx.doi.org/10.1080/09540120902883069
  • FIPSE. (2005). Informe FIPSE sobre discriminación arbitraria de las personas que viven con VIH o SIDA [FIPSE report on the arbitrary discrimination of people living with HIV or AIDS]. Madrid, Spain: FIPSE.
  • Franke M. F., Muñoz M., Finnegan K., Zeladita J., Sebastian J. L., Bayona J. N., & Shin S. S. (2010). Validation and abbreviation of an HIV Stigma Scale in an adult Spanish-speaking population in urban Peru. AIDS and Behavior, 14, 189–199. http://dx.doi.org/10.1007/s10461-008-9474-1
  • Fuster M. J. (2011). La percepción del estigma en las personas con VIH: Sus efectos y formas de afrontamiento. [The perception of stigma in people with HIV: Its effects and ways of coping] (Published doctoral dissertation). Madrid, Spain: UNED. Retrieved from http://e-spacio.uned.es/fez/ eserv.php?pid=tesisuned:Psicologia-MJfuster&dsID=Documento.pdf
  • Fuster M. J., Molero F., Gil de Montes L., Agirrezabal A., & Vitoria A. (2013). HIVand AIDS-related stigma: Psychosocial aspects in a representative Spanish sample. The Spanish Journal of Psychology, 16, E30. http://dx.doi.org/10.1017/sjp.2013.52
  • Fuster-Ruiz de Apodaca M. J., Molero F., Gil de Montes L., Agirrezabal A., Toledo J., Jaén A., & the Spanish Group for the Study of HIV-Related Stigma. (2014). Evolution of HIV-related stigma in Spain between 2008 and 2012. AIDS Care: Psychological and Socio-Medical Aspects of AIDS/HIV, 26, s41–s45. http://dx.doi.org/10.1080/09540121.2014.906557
  • Fuster-RuizdeApodaca M. J., Molero F., & Ubillos S. (2015). Assessment of an intervention to reduce the impact of stigma on people with HIV, enabling them to cope with it. Anales de Psicología. Retrieved from http://revistas.um.es/analesps/article/view/192121
  • Greeff M., Uys L. R., Wantland D., Makoae L., Chirwa M., Dlanini P., … Holzemer W. L. (2010). Perceived HIV stigma and life satisfaction among persons living with HIV infection in five African countries: A longitudinal study. International Journal of Nursing Studies, 47, 475–486. http://dx.doi.org/10.1016/j.ijnurstu.2009.09.008
  • Green P. (1978). Analyzing multivariate data. Hinsdale, IL: Dryden Press.
  • Herek G. M, Saha S., & Burack J. (2013). Stigma and psychological distress in people with HIV/AIDS. Basic and Applied Social Psychology, 35, 41–54. http://dx.doi.org/10.1080/01973533.2012.746606
  • Holzemer W. L., Uys L. R., Chirwa M. L., Greeff M., Makoae L. N., Kohi T. W., … Durrheim K. (2007). Validation of the HIV/AIDS Stigma Instrument—PLWA (HASI-P), AIDS Care: Psychological and Socio-Medical Aspects of AIDS/HIV, 19, 1002–1012. http://dx.doi.org/10.1080/09540120701245999
  • Jeyaseelan L., Kumar S., Mohanraj R., Rebekah G., Rao D., & Manhart L. E. (2013). Assessing HIV/AIDS Stigma in South India: Validation and abridgment of the Berger HIV Stigma Scale. AIDS and Behavior, 17, 434–443. http://dx.doi.org/10.1007/s10461-011-0128-3
  • Jimenez J. C., Puig M., Ramos J. C., Morales M., Asencio G., Sala A. C., ... , Zorrilla C. (2010). Measuring HIV felt stigma: A culturally adapted scale targeting PLWHA in Puerto Rico. AIDS care: Psychological and Socio-Medical Aspects of AIDS/HIV, 22, 1314–1322. http://dx.doi.org/10.1080/09540121003758481
  • Kalichman S. C., Simbayi L. C., Cloete A., Mthembu P. P., Mkhonta R. N., & Ginindza T. (2009). Measuring AIDS stigmas in people living with HIV/AIDS: The Internalized AIDS-related Stigma Scale. AIDS Care: Psychological and Socio-Medical Aspects of AIDS/HIV, 21, 87–93. http://dx.doi.org/10.1080/09540120802032627
  • King R., Katuntu D., Lifshay J., Packel L., Batamwita R., Nakayiwa S., … & Bunnell R. (2008). Processes and outcomes of HIV serostatus disclosure to sexual partners among people living with HIV in Uganda. AIDS and Behavior, 12, 232–243. http://dx.doi.org/10.1007/s10461-007-9307-7
  • Li L., Liang L. J., Lin C., Wu Z., & Wen Y. (2009). Individual attitudes and perceived social norms: Reports on HIV/ AIDS-related stigma among service providers in China. International Journal of Psychology, 44, 443–450. http://dx.doi.org/10.1080/00207590802644774
  • Logie C., & Gadalla T. M. (2009). Meta-analysis of health and demographic correlates of stigma towards people living with HIV. AIDS Care: Psychological and Socio-Medical Aspects of AIDS/HIV, 21, 742–753. http://dx.doi.org/10.1080/09540120802511877
  • Mahajan A. P., Sayles J. N., Patel V. A., Remien R. H., Sawires S. R., Ortiz D. J., … Coates T. J. (2008). Stigma in the HIV/AIDS epidemic: A review of the literature and recommendations for the way forward. AIDS, 22, S67–S79. http://dx.doi.org/10.1097/01.aids.0000327438.13291.62
  • Massicotte A. C. R. (2010). A comparative analysis of quality of life and stigma experienced by people living with HIV receiving antiretroviral therapy in a home-based care project in Malema and Ribaue districts, Mozambique. Pretoria, South Africa: University of South Africa. (Published Doctoral dissertation). Retrieved from http://uir.unisa.ac.za/ xmlui/bitstream/handle/10500/4256/dissertation_ massicotte_a.pdf?sequence=1
  • Miric M. (2004, March). Escala para la evaluación del Estigma Sentido El Caribe, varios idiomas y muchas culturas, unido para combatir el VIH/SIDA [Scale to assess Felt Stigma El Caribe, various languages and many cultures, united to fight HIV/AIDS]. Paper presented at "El Caribe, varios idiomas y muchas culturas, unido para combatir el VIH/sida", Santo Domingo, Dominican Republica: Paradigmas. Abstract retrieved from http://hispanoamerica.sidastudi.org/es/registro/ ff8081813cd41abe013cd9adcbd7003a
  • Obermeyer C. M., & Osborn M. (2007). The utilization of testing and counseling of HIV: A review of the social and behavioral evidence. American Journal of Public Health, 97, 1762–1774. http://dx.doi.org/10.2105/AJPH.2006.096263
  • Parker R., & Aggleton P. (2003). HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science & Medicine, 57, 13–24. http://dx.doi.org/10.1016/S0277-9536(02)00304-0
  • Quinn D. M. (2006). Concealable versus conspicuous stigmatized identities. In S. Levin & C. van Laar, (Eds.), Stigma and group inequality: Social psychological perspectives (pp. 83–103). Mahwah, NJ: Erlbaum.
  • Rao D., Kekwaletswe T. C., Hosek S., Martinez J., & Rodriguez F. (2007). Stigma and social barriers to medication adherence with urban youth living with HIV. AIDS Care: Psychological and Socio-Medical Aspects of AIDS/HIV, 19, 28–33. http://dx.doi.org/10.1080/09540120600652303
  • Ruiz M. A., & Baca E. (1993). Design and validation of the Quality of Life Questionnaire: A generic health-related quality of life instrument. European Journal of Psychological Assessment, 9, 19–32.
  • Sarna A., Luchters S., Geibel S., Chersich M. F., Munyao P., Kaai S., ... Rutenberg N. (2008). Short-and long-term efficacy of modified directly observed antiretroviral treatment in Mombasa, Kenya: A randomized trial. JAIDS Journal of Acquired Immune Deficiency Syndromes, 48, 611–619. http://dx.doi.org/10.1097/QAI.0b013e3181806bf1
  • Steward W. T., Chandy S., Singh G., Panicker S. T., Osmand T. A., Heylen E., & Ekstrand M. L. (2011). Depression is not an inevitable outcome of disclosure avoidance: HIV stigma and mental health in a cohort of HIV-infected individuals from southern India. Psychology, Health and Medicine, 16, 74–85. http://dx.doi.org/10.1080/13548506.2010.521568
  • Strachan E. D., Bennett W. R. M., Russo J., & Roy-Byrne P. P. (2007). Disclosure of HIV status and sexual orientation independently predicts increased absolute CD4 cell counts over time for psychiatric patients. Psychosomatic Medicine, 69(1), 74–80. http://doi.org/10.1097/01.psy.0000249900.34885.46
  • Stutterheim S. E., Bos A. E. R., Pryor J. B., Brands R., Liebregts M., & Schaalma H. P. (2011). Psychological and social correlates of HIV status disclosure: The significance of stigma visibility. AIDS Education and Prevention, 23, 382–392. http://dx.doi.org/10.1521/aeap.2011.23.4.382
  • Taylor D. M., Wright S. C., & Porter L. E. (1994). Dimensions of perceived discrimination: The personal/group discrimination discrepancy. In M. P. Zanna & J. M. Olson (Eds.), The psychology of prejudice: The Ontario Symposium (Vol. 7., pp. 233–235). Mahwah, NJ: Erlbaum.
  • The International Test Commission. (2006). International guidelines on computer based and internet delivered testing. International Journal of Testing, 6, 143–171.
  • Tsutsumi A., & Izutsu T. (2010). Quality of life and stigma. In R. Preedy & R. R. Watson (Eds.), Handbook of disease burdens and quality of life measures (pp. 3490–3499). New York, NY: Springer.
  • UNAIDS. (2002). A conceptual framework and basis for action: HIV/AIDS stigma and discrimination. Geneva, Switzerland: UNAIDS. Retrieved from http://data.unaids.org/publications/IRC-pub02/jc891-wac_ framework_en.pdf
  • Vandenberg R. J., & Lance C. E. (2000). A review and synthesis of the measurement invariance literature: Suggestions, practices, and recommendations for organizational research. Organizational Research Methods, 3(1), 4–70. http://dx.doi.org/10.1177/109442810031002
  • Visser M. J., Kershaw T., Makin J. D., & Forsyth B. W. C. (2008). Development of parallel scales to measure HIV-related stigma. AIDS and Behavior, 12, 759–771. http://dx.doi.org/10.1007/s10461-008-9363-7
  • Wiklander M., Rydström L. -L., Ygge B. -M., Navér L., Wettergren L, & Eriksson L. (2013). Psychometric properties of a short version of the HIV stigma scale, adapted for children with HIV infection. Health and Quality of Life Outcomes, 11, 195. http://dx.doi.org/10.1186/1477-7525-11-195
  • Wright K., Naar-King S., Lam P., Templin T., & Frey M. (2007). Stigma scale revised: Reliability and validity of a brief measure of stigma for HIV + youth. Journal of Adolescent Health, 40(1), 96–98. http://dx.doi.org/10.1016/j.jadohealth.2006.08.001
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