Características de los usuarios de la Asociación de Parálisis Cerebral

  1. M.Y. González-Alonso 1
  2. A.C. Matía Cubillo 2
  1. 1 Universidad de Burgos, Burgos, España
  2. 2 Gerencia de Atención Primaria de Burgos, Burgos, España
Journal:
Semergen: revista española de medicina de familia

ISSN: 1138-3593

Year of publication: 2018

Issue: 8

Pages: 557-561

Type: Article

DOI: 10.1016/J.SEMERG.2018.07.003 DIALNET GOOGLE SCHOLAR

More publications in: Semergen: revista española de medicina de familia

Abstract

Introduction As the life expectancy has increased in individuals with cerebral palsy, this has led to being able to assess the changes in the bio-psycho-social dimensions of their health. Objective The aim of the study is to describe the characteristics of individuals with cerebral palsy and to evaluate their functional situation. Methods Cross-sectional descriptive study conducted on a sample of 26 individuals between 27 and 65 years old with cerebral palsy. Data was collected during a semi-structured interview. The Cross Motor Function Classification System (GMFCS), the Manual Ability Classification System (MACS), and the Communication Function Classification System (CFCS), were used to evaluate the functional situation. Results The profile of the adult seen in the Cerebral Palsy Association of Burgos, Spain, is male, over 40 years old, single, illiterate, with no professional qualification, lives in a residence, receives social benefit, and with great functional disability. Conclusions The functional capacity of people with cerebral palsy who are in adult care centres is low. It emphasises the low cultural level and the lack of professional qualification and all of them have a disability that limits their ability to perform daily activities, possibly related to the high mean age.

Bibliographic References

  • A. Colver, C. Fairhurst, P. Pharoah Cerebral palsy The Lancet., 383 (2014), pp. 1240-1249 ArticleDownload PDFView Record in ScopusGoogle Scholar
  • P.L. Rosenbaum, N. Paneth, A. Levinton, M. Goldstain, M. Bax, D. Damiano, et al. A report: The definition and classification of cerebral palsy Dev Med Child Neurol., 109 (2007), pp. 8-14 View Record in ScopusGoogle Scholar
  • M.C. Patterson Management and prognosis of cerebral palsy UpToDate (2016), pp. 1-150 [consultado 28 Feb 2018]. Disponible en: https://www. uptodate. com/contents/management-and-prognosis-of-cerebral-palsy View Record in ScopusGoogle Scholar
  • G. Miller Epidemiology, etiology, and prevention of cerebral palsy Dev Med Child Neurol, 58 (2016), p. 85 View Record in ScopusGoogle Scholar
  • R. Cancho Candela, J.E. Fernández Alonso, E. Lanza Fernández, M.A. Lozano Domínguez, J.M. Andrés de Llano, I. Folgado Toranzo Estimación de la prevalencia de parálisis cerebral en la comunidad de Castilla y León mediante el registro de minusvalías An Pediatr (Barc)., 65 (2006), pp. 97-100 ArticleDownload PDFCrossRefView Record in ScopusGoogle Scholar
  • M. Badia-Corbella, P. Rodríguez-Pedraza, M.B. Orgaz-Bazc, J.M. Blanco-Pedraz Calidad de vida en los pacientes con parálisis cerebral en proceso de envejecimiento Rehabilitación., 47 (2013), pp. 194-199 ArticleDownload PDFView Record in ScopusGoogle Scholar
  • M. Bottos, A. Feliciangeli, L. Sciuto, C. Gericke, A. Vianello Functional status of adults with cerebral palsy and implications for treatment of children Dev Med Child Neurol., 43 (2001), pp. 516-528 View Record in ScopusGoogle Scholar
  • J.C. Brooks, D.J. Strauss, R.M. Shavelle, L.M. Tran, L. Rosenbloom, Y.W. Wu Recent trends in cerebral palsy survival. Part II: Individual survival prognosis Dev Med Child Neurol., 56 (2014), pp. 1065-1071 CrossRefView Record in ScopusGoogle Scholar
  • M.Y. González-Alonso Parálisis cerebral y envejecimiento activo Junta de Castilla y León, Valladolid (2016) Google Scholar
  • M. Horsman, M. Suto, B. Dudgeon, S.R. Harris Ageing with cerebral palsy: Psychosocial issues Age Ageing., 39 (2010), pp. 294-299 CrossRefView Record in ScopusGoogle Scholar
  • R. Palisano, P. Rosenbaum, S. Walter, D. Russell, E. Wood, B. Galuppi Desarrollo y confiabilidad de un sistema para clasificar la función motora gruesa en niños con parálisis cerebral Dev Medicina Niño Neurol., 39 (1997), pp. 214-223 View Record in ScopusGoogle Scholar
  • A.C. Eliasson, L. Krumlinde-Sundholm, B. Rosblad, E. Beckung, M. Arner, A.M. Ohrvall, et al. El sistema de clasificación de habilidad manual (MACS) para niños con parálisis cerebral: desarrollo de escala y evidencia de validez y confiabilidad Dev Med Child Neurol., 48 (2006), pp. 549-554 View Record in ScopusGoogle Scholar
  • M.J. Hidecker, N. Paneth, P.L. Rosenbaum, R.D. Kent, J. Lillie, J.B. Eulenberg, et al. Desarrollar y validar el sistema de clasificación de funciones de comunicación para personas con parálisis cerebral Dev Med Child Neurol., 53 (2011), pp. 704-710 CrossRefView Record in ScopusGoogle Scholar
  • B. Findlay, L. Switzer, U. Narayanan, S. Chen, D. Fehlings Investigating the impact of pain, age, Gross Motor Function Classification System, and sex on health-related quality of life in children with cerebral palsy Dev Med Child Neurol., 58 (2016), pp. 292-297 CrossRefView Record in ScopusGoogle Scholar
  • C. Kerr, B.C. Mcdowell, J. Parkes, M. Stevenson, A.P. Cosgrove Age-related changes in energy efficiency of gait, activity, and participation in children with cerebral palsy Dev Med Child Neurol., 53 (2011), pp. 61-67 CrossRefView Record in ScopusGoogle Scholar
  • P. Haak, M. Lenski, M.C. Hidecker, M. Li, N. Paneth Cerebral palsy and aging Dev Med Child Neurol., 51 (Suppl 4) (2009), pp. 16-23 CrossRefView Record in ScopusGoogle Scholar
Data source: Dialnet