Buenas prácticas como motor de cambio en la atención del alumnado con enfermedades minoritarias

  1. Molina Garuz, María Cruz 1
  2. Roselló Ramón, María Rosa 2
  3. Fernández Hawrylak, María 3
  4. Muntaner Guasp, Joan Jordi 2
  1. 1 Universidad de Barcelona, España
  2. 2 Universidad de las Islas Baleares, España
  3. 3 Universidad de Burgos, España
Journal:
Educatio siglo XXI: Revista de la Facultad de Educación

ISSN: 1989-466X 1699-2105

Year of publication: 2023

Issue Title: Inclusión Educativa del alumnado con Enfermedades Raras

Volume: 41

Issue: 3

Pages: 51-74

Type: Article

DOI: 10.6018/EDUCATIO.565411 DIALNET GOOGLE SCHOLAR lock_openDIGITUM editor

More publications in: Educatio siglo XXI: Revista de la Facultad de Educación

Abstract

Inclusive good practices are successful actions or experiences that can be replicated to ensure educational quality for all. However, there is a paucity of data that identify what characteristics these practices should include to support students within an inclusive educational centre. This paper presents the meaning of good inclusive educational practices with special attention to students affected by rare diseases. The aim is to identify and characterise good practices within the framework of an inclusive school. A qualitative methodology is used and, as of different case studies from eight autonomous regions, it is introduced how participants conceptualise in general inclusive practices, and in particular with students with rare diseases. The results highlight the complexity and heterogeneity of the concept of good practices, the involvement of schools by introducing changes in their organisation and functioning, in the supports and in the organisation and methodologies of the classroom. However, these actions need to be extended to the entire educational system, with a profound change in its structure. And further work needs to be done to find out what are the best practices for teacher training based on inclusive education.  

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